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Tuesday, November 19, 2013


We have FABULOUS news at the Katie Gerstenberger Endowment for Cancer Research. Because of your generosity - you, our family and friends - the value of the endowment is now at an all-time high of $224,168!
This is beyond our wildest dreams of what would be raised in Katie's memory, and she would be thrilled. She would also be thrilled with the advancements in cancer research, and the hope that this means for patients like her. Here is a news flash from the Ben Towne Center for Childhood Cancer Research (which Katie's endowment supports):


The second clinical trial application using reprogrammed T cells was submitted to the FDA today! This trial (PLAT-02) will be for relapsed pediatric acute lymphoblastic leukemia (post-transplant).

Our thanks to the entire team at the Ben Towne Center for your incredible efforts!
"The second clinical trial application using reprogrammed T cells was submitted to the FDA today! This trial (PLAT-02) will be for relapsed pediatric acute lymphoblastic leukemia (post-transplant).

"Our thanks to the entire team at the Ben Towne Center for your incredible efforts!"
The principal of Katie's endowment remains in trust at Seattle Children's Hospital; the income from Katie's endowment is donated to the Ben Towne Center for Childhood Cancer Research (BTCCCR) each year (usually 2x a year).

If you would like to take a tour of the BTCCCR, let me know and I will help you arrange it.

Thursday, October 10, 2013

More Good News

1100 people gathered for the Ben Towne Foundation's BENefit 2013 (Image: Bryce Covey Photography)
Around here, autumn is the time when many charities host fundraisers. Gregg and I are always pleased to attend the Ben Towne Foundation's annual BENefit. We've had the privilege of being an active part of this event from its inception, and watching it grow each year lifts my heart like no other "gala" can.

Though the thing that drew us together with the Townes is the worst thing that has ever happened to us, our friendship goes far beyond that loss. It includes our sense of humor, commitment to family, a lot of coincidences, shared tastes and sensibilities, fierceness, passion and joie de vivre. It is pure pleasure to be counted among their friends and supporters, and to do all that we can to share their message and raise awareness of it.
Jeff & Carin Towne with Dr. Michael Jensen (Image: Bryce Covey Photography)
Though there are always some moments during the program that make me cry, most of my emotions at the BENefit are joyful, because the Ben Towne Foundation is getting the job done - making my dreams of a cure for pediatric cancer come true, in this time and place. Through their efforts, the pace is accelerating here in Seattle under the leadership of Dr. Mike Jensen and Dr. Rebecca Gardner (two special favorites of mine), among others. The Katie Gerstenberger Endowment for cancer research supports their laboratory.
Reba & Mary-Jane with me
Joining us at our table were my parents, brother Jim and sister-in-law Caroline, and our friends Reba, Bill, Mary-Jane and Brian. Let me give you a few statistics about our table: 60% of us had our only daughter die from pediatric cancer. Every single person at our table (100%) had suffered the loss of someone close to them as a result of pediatric cancer. For 20% of our table, it was their ONLY child (100% of the children in that family). All of us want to see this disease wiped out, with as few side effects, as quickly as possible. And we were in the right place to help the researchers accomplish that.

The news is good, my friends: the first patient in the clinical trial of T-Cell therapy continues to enjoy remission, gained after only 9 days of treatment, with side effects of flu-like symptoms during that time. Her mother was a guest at the BENefit, and spoke to the audience about what our support for this therapy means to her. The next patient is ready to enroll, and it looks as if the clinical trial will soon be expanded to include a much broader range of ages - open for more patients to be treated and cured in this new, non-toxic way!

Did you know that it can cost 10 times more to treat a child with traditional chemotherapy than with T-Cell therapy - and surgery costs even more? The bill for Katie's care was in the neighborhood of a million dollars, for which we were (thank God) covered by medical insurance - but there are many whose finances are completely wiped out by such treatment, and without the promise of a cure!

Think of it this way: you could spend $350,000 for a patient to endure chemo, which can cause secondary cancers, organ damage, susceptibility to infections and reproductive problems - or $30,000 for a patient to have T-Cell therapy, with no long-term damage whatsoever, and continuing immune-system support for remission. Which would you choose for your child - or for yourself? What would you like to see become the "norm?"

On this day - the very one on which Katie was admitted into the hospital in 2006 - people such as Katie, Carin and Jeff Towne, Dr. Jensen and Dr. Gardner inspire me. Who (or what) inspires you to give?

Wednesday, July 10, 2013

HOPE is HERE, NOW, Because of YOU

Thank you.
You have made this miracle possible with your donations to the Katie Gerstenberger Endowment, through our support of the Ben Towne Center for Childhood Cancer Research.

Katie would be happy and proud that her memory inspired you to give to her endowment, and even more delighted that your support has brought HOPE, HERE and NOW, for cancer patients. 
This means we are closer to an end to suffering from treatments, damaging side effects and more, Because of Katie
and because of you.
for helping to make this dream come true!