Juno Therapeutics in the News (T-Cell Therapy)

Juno Therapeutics has been in the news lately; they "went public" on the NASDAQ exchange recently (you can look up the stock with the symbol JUNO). Juno was also featured in Seattle Business magazine last month, in a fascinating article about the business climate for biotechnology here in Seattle. The article explores how Juno fits into that picture, and is well worth the time it takes to read; you can access it easily by clicking the link HERE.

The day we have prayed for is drawing closer through this research - the day when we stop poisoning cancer patients with chemotherapy and radiation, and strengthen their bodies using their own immune system's T-cells. Katie would be thrilled - somehow, I believe that she IS thrilled.

10 Lives Saved

You may have seen (on my other blogs, or on the Ben Towne Foundation website and facebook page) that we attended the Ben Towne Foundation's #BTFBenefit2014 last Friday evening. What you may not know (though I hope you do) is that the Katie Gerstenberger Endowment supports the same research that the Ben Towne Foundation funds. The income which accrues on the principal of the endowment goes to the Ben Towne Center for Childhood Cancer Research.

#BTFBenefit2014

On Friday evening, we celebrated this news from the Ben Towne Center:
- a clinical trial for the treatment of neuroblastoma has been submitted to the FDA for approval and
- 10 PATIENTS who have been treated with T-cell therapy ARE IN REMISSION!

Ten patients who had experienced relapse, who had no other treatment options - whose hope for a cure was completely exhausted, and were facing death - those ten children are now in remission.

Ten families are not heartbroken today - parents, siblings, extended family and community - have their precious, beloved child with them. Ten families did not have to sign "do not resuscitate" forms, did not have to request hospice care, did not have to plan a memorial service, pick a headstone, face an empty bedroom.

Ten.

Your donations to the Katie Gerstenberger Endowment support this ground-breaking, life-restoring work. Thank you!

More Good News

1100 people gathered for the Ben Towne Foundation's BENefit 2013 (Image: Bryce Covey Photography)

Around here, autumn is the time when many charities host fundraisers. Gregg and I are always pleased to attend the Ben Towne Foundation's annual BENefit. We've had the privilege of being an active part of this event from its inception, and watching it grow each year lifts my heart like no other "gala" can.

Though the thing that drew us together with the Townes is the worst thing that has ever happened to us, our friendship goes far beyond that loss. It includes our sense of humor, commitment to family, a lot of coincidences, shared tastes and sensibilities, fierceness, passion and joie de vivre. It is pure pleasure to be counted among their friends and supporters, and to do all that we can to share their message and raise awareness of it.

Jeff & Carin Towne with Dr. Michael Jensen (Image: Bryce Covey Photography)

Though there are always some moments during the program that make me cry, most of my emotions at the BENefit are joyful, because the Ben Towne Foundation is getting the job done - making my dreams of a cure for pediatric cancer come true, in this time and place. Through their efforts, the pace is accelerating here in Seattle under the leadership of Dr. Mike Jensen and Dr. Rebecca Gardner (two special favorites of mine), among others. The Katie Gerstenberger Endowment for cancer research supports their laboratory.

Reba & Mary-Jane with me

Joining us at our table were my parents, brother Jim and sister-in-law Caroline, and our friends Reba, Bill, Mary-Jane and Brian. Let me give you a few statistics about our table: 60% of us had our only daughter die from pediatric cancer. Every single person at our table (100%) had suffered the loss of someone close to them as a result of pediatric cancer. For 20% of our table, it was their ONLY child (100% of the children in that family). All of us want to see this disease wiped out, with as few side effects, as quickly as possible. And we were in the right place to help the researchers accomplish that.

The news is good, my friends: the first patient in the clinical trial of T-Cell therapy continues to enjoy remission, gained after only 9 days of treatment, with side effects of flu-like symptoms during that time. Her mother was a guest at the BENefit, and spoke to the audience about what our support for this therapy means to her. The next patient is ready to enroll, and it looks as if the clinical trial will soon be expanded to include a much broader range of ages - open for more patients to be treated and cured in this new, non-toxic way!

Did you know that it can cost 10 times more to treat a child with traditional chemotherapy than with T-Cell therapy - and surgery costs even more? The bill for Katie's care was in the neighborhood of a million dollars, for which we were (thank God) covered by medical insurance - but there are many whose finances are completely wiped out by such treatment, and without the promise of a cure!

Think of it this way: you could spend $350,000 for a patient to endure chemo, which can cause secondary cancers, organ damage, susceptibility to infections and reproductive problems - or $30,000 for a patient to have T-Cell therapy, with no long-term damage whatsoever, and continuing immune-system support for remission. Which would you choose for your child - or for yourself? What would you like to see become the "norm?"

On this day - the very one on which Katie was admitted into the hospital in 2006 - people such as Katie, Carin and Jeff Towne, Dr. Jensen and Dr. Gardner inspire me. Who (or what) inspires you to give?

HUGE, Wonderful News

Thank You to our donors for your generosity to the Katie Gerstenberger Endowment for Solid Tumor Research.  update on the endowment’s growth:   Due to your generosity and market growth,   as of March 31, 2012, the market value of the endowment is $167,373. This is a great increase over March 2011, when the total was $140,554. Thank you!  what we are doing with the endowment’s income:  last summer, Seattle Children’s Hospital’s Research Institute opened the Center for Childhood Cancer Research (recently re-named the Ben Towne Center for Childhood Cancer Research in memory of the son of our friends, Carin and Jeff Towne. You can learn more about the Townes’ work at www.bentownefoundation.org.) Dr. Michael Jensen, the director of the new center, is a man of vision, passion and compassion, who is pioneering the use of T-cells to kill cancer, rather than toxic chemotherapy and radiation. His work is a promising new kind of treatment, which has just (last week) received approval from the FDA to commence clinical trials!  No chemotherapy, no radiation, no harmful side effects nor long-term disability, no secondary cancers - this is a treatment protocol of which we have dreamed for many years, and it is about to begin. The income from the Katie Gerstenberger Endowment for Cancer Research is funding this work. Your contributions are supporting research to change the way cancer is treated – for the better. an invitation to see what your donations are accomplishing:  Dr. Jensen has kindly offered to conduct a private tour of the research center (in downtown Seattle at 1100 Olive Way) for our endowment's friends and donors on Thursday, October 11, 2012 at 1:00 P.M.  If you would like to tour the center, meet Dr. Jensen and learn more about the research our endowment is supporting, please let me know by emailing me at karenlboren@yahoo.com. We would love to share this experience with you, and we need to know how many are planning to join us. We are profoundly grateful to be participating in this research, and grateful to you for your donations, which are making this possible.

Seattle Children's Cancer Advocacy Network (C.A.N.)

The Seattle Children's Cancer Advocacy Network (C.A.N.) website is LIVE, and it's awesome! Please follow this link and browse through the site. There are interesting pages on the site that will inform and inspire you. "Our Partners" is a group of businesses that have hosted donation cans to help us raise awareness and funds in our own communities. Look for Poulsbo, Bainbridge Island and Silverdale businesses that you know, and please thank them by doing business with them! Every bit of support for the Seattle Children's Cancer Advocacy Network goes to pediatric cancer research! You will find Katie's Comforters Guild featured in the "About Us" tab.

THANKS and HOPE

Our generous family and friends, we

thank you.

The principal balance of the

Katie Gerstenberger

Endowment for Cancer Research

as of August, 2010 is

$121,209.

We will use the income from this principal to continue to fund solid tumor research, per Katie's wishes. The focus of our funding will now be the work of Dr. Mike Jensen, who recently moved to the Seattle Children's Hospital Center for Childhood Cancer from the City of Hope in L.A.

Dr. Jensen is pioneering the use of the body's own immune system to treat cancer. He has succeeded in "teaching" immune system cells to recognize cancer cells, and to destroy them. You can see and hear Dr. Jensen explaining how it works in

this brief video.

Please take a few moments to watch, and be filled with HOPE.

It is happening - our hopes, our prayers, are on the way to being answered. Thanks be to God!

Something Wonderful: HOPE

There is important (and wonderful) news over at Gberger.

The Katie Gerstenberger Endowment at Seattle Children's Hospital

Dear Friends,

This blog was created to keep you up to date on what is going on over at the Katie Gerstenberger Endowment for Cancer Research (solid tumors) at Seattle Children's Hospital.

Katie was a vibrant, active, intelligent, kind, funny sparkly girl of 11 when she was diagnosed with a huge tumor in her abdomen. She had no symptoms until about 3 weeks before her diagnosis, when she began to exhibit the symptoms of a virus. After 3 weeks of clinic visits and tests, the horrendous news came that she was in grave danger of losing her life, and had to be admitted to the hospital immediately. Experts were consulted in various places around the world to diagnose her specific type of tumor, and to determine the best course of treatment for it.

We spent the next 5 months supporting Katie as she endured 5 rounds of toxic chemotherapy, as well as an 18-hour surgery to remove the tumor (and a kidney, adrenal gland, inferior vena cava and a lobe of her liver). It's a miracle that she survived this surgery, and she spent 6 weeks in the hospital, recovering from it. She then was allowed to go home to recuperate further, and began to take a pill-form of "maintenance" chemotherapy. By early summer, she was strong enough to go to the American Cancer Society's Camp Goodtimes West (on Vashon Island) for a week with her brother, David.

Sadly, a couple of weeks after camp, Katie began to suffer from severe pain. We took her to the clinic, and then to the hospital for a CT scan, & upon reviewing it, her doctor discovered another large tumor - but this one was inoperable. We took Katie home to begin hospice care.

The one bright spot during this time was that Katie's dream of being a bridesmaid came true. She was the maid of honor for her cousin Andrea's wedding to Mike Cunningham. Katie LOVED being their maid of honor. We treasure those memories.

We (Katie's family) created this endowment in her honor, and we asked Katie what she wanted the funds to be used for. Her answer was that she wanted the endowment to support research to find a cure for solid tumors such as the one she had, which was adrenocortical carcinoma. She knew that the endowment was started before she passed away. The principal of the endowment is preserved, and the income is collected and used to fund research.

When Katie passed away, we asked people to donate to her endowment instead of sending flowers to us. The did this very generously, and many people have continued to support the endowment. It was up to nearly $80,000.00 last summer, before the stock market took a tumble. It is now near $66,000.00, and Dr. Julie Park (Katie's oncologist) is the one who advises us on where the income can best be used to carry out Katie's wishes.

If you would like to know more about the Katie Gerstenberger Endowment for Cancer Research, please leave a comment here. If you would like to donate to Seattle Children's Hospital in Katie's memory, please click HERE.